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Local seeks partners in SCV 'Human Race' fundraiser

Posted: April 5, 2011 3:44 p.m.
Updated: April 6, 2011 1:00 p.m.
 

Dear Editor,

I am writing to bring awareness to Creutzfeldt-Jakob Disease (CJD). CJD is a rare, degenerative and fatal brain disorder caused by an infectious agent known as a "prion." Currently there is no cure or treatment.

CJD can be genetic, sporadic or acquired. In my family's case we have been affected with the genetic form. There is a 50 percent chance of carrying the mutation.

My father-in-law passed away from CJD at the age of 59 years old, six months after his diagnosis. My brother-in-law was 49 years old when he started to show symptoms of this disease.

The disease attacks the brain and the victim may experience failing memory, behavioral changes, lack of coordination and vision problems. As the illness progresses, mental deterioration becomes more severe and involuntary movements, blindness, weakness in the arms and legs. and then coma may occur and ultimately death!

My husband and I will be participating in the Human Race in Sonoma County on May 7 in order to raise money for University of California, San Francisco for CJD research.

The Human Race is a nationwide community fundraising event for nonprofit organizations and is the largest collaborative fundraising event in Sonoma County as well as the largest Human Race in the nation.

As a local resident, I would like to organize a Human Race here in the SCV to raise awareness and funds for research into CJD.

I am looking for community partners and interested individuals to help my vision of a local fundraiser a reality.

Sincerely,
Carmen Garcia

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