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Holiday boutique to raise awareness, funds for Friedreich's Ataxia research Nov. 13

Posted: October 9, 2010 10:05 a.m.
Updated: October 9, 2010 10:05 a.m.

Stephanie's Hope founder, Stephanie Magness.

 

Stephanie's Hope, a non-profit organization dedicated to raising awareness of Freidreich's Ataxia, will host its 5th Annual Holiday Boutique on Saturday, Nov. 13 at Rio Norte Junior High.

In 2006, Santa Clarita resident Stephanie Magness and family formed Stephanie's Hope to raise awarness of Friedreich's Ataxia and research funds to find a cure.

A condensed definition of Freidreich's Ataxia (FA) is: a debilitating, life-shortening, degenerative neuro-muscular disorder which affects about one in 50,000 people in the United States.

"Even though I will be honest and tell you that my diagnosis is a lot to take, there is so much hope to be found right now for everyone affected by FA," Magness said.

"There have been great leaps and bounds in the area of research, proving that a cure is a very real possibility."

To find out more about Stephanie's Hope, Freidreich's Ataxia, the annual holiday boutique, or to read founder Stephanie Magness' story, visit stephanieshope.com.

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